An update

A Ledge to Rest On

He said I’m standing on a ledge.

            He said it’s like I’m climbing up from the depths of hell on a hot metal ladder trying to reach the top until I find it. A ledge to rest on. A ledge still somewhere in hell, but one I can sit on, waiting until I once again have to force myself to get back on that burning ladder.

            But the problem is, until today, I haven’t realized that I am just sitting here. I sit here today still feeling pain, depression, and exhaustion wondering why my meds are just not doing the job without realizing that I am not working as hard as I should be.

            Sometimes I think my psychiatrist knows me better than anyone I have ever met. I am lucky to have found him because without his honest words I would not realize that I wasn’t working hard enough. Not realizing that I’ve been deceiving myself.

            It is easy when pain is no longer excruciating, but bearable to think that this is the way it is going to be. It is easy to believe that you have done your duty and it is the drugs that are not lining up. After seven intensive years of therapy it is easy to believe that I have done all the work necessary and that the pain and depression are, in fact, a part of my personality. But they’re not.

            I have been told, and I hope to believe it, that there is a top of the ladder. That there is solid ground on which I can rest; solid ground where I can feel safe and secure and happy. But it will take work.

            I can’t imagine going through this alone. I know I am a lucky one. Without someone to tell me, “Look, you’re doing that thing you do, where you shut out the pain and act pleasant and nice so I stop asking questions”. I can’t imagine not having someone to call me out as I deceive myself again and again.

But I’m glad I know now, that I know that there is a higher ground, that there is a place where I won’t have to feel pain all the time. And though I know life can never be completely pain-free I know I can get there.

There is always more work to do.

The pieces come back together...

This morning I returned from a weekend where eighteen family members (three adopted family members) came to one house to celebrate being together. We ate and ate, practiced some old family traditions (Scol!) and slept anywhere we could that wasn't too damp or lumpy (though this usually changes by morning). It was a beautifully sunny weekend and I felt so much love between all of us as we sat around the fire, enjoyed homemade pies or feasted on paella.

When I got home this afternoon I realized it was once again time to work on the book (which now has a publisher!!) so I left my bag by the door and got to work. I find it important to note that I travel around the country speaking publicly about my story. I share it all the time to audiences of 700+, but I haven't read it in a while. In a little over a year and a half in fact. And I will tell you what, it is hard.  Really really hard. And painful.

It is hard to remember, no, let me rephrase, it is hard to read your exact thoughts when you are dealing with the pain of suicidal ideation or the pain of losing friends because of your depression. It is one thing to work through it everyday, which I have gotten much better at doing, but another thing to return to your exact transcripts from the moment of pain.

I remember when we first started playing with thoughts about the book,  people would ask us why we would want to revisit so much pain. And I always knew why, I want to teach the people who don't understand and let the ones who do understand know that they are not alone. I knew it would be hard. But I suppose, after a year and a half of not reading it I forgot.

I suppose the thing I am here to say is, I am glad that I spent the weekend with my family. I'm glad that they could remind me of the happiness and joy in my life even when I'm forced to remember the pain. I'm glad to know that when I was in the most painful spots, those points in the book that made me start crying even  reading them today,  those moments when I never thought anything would ever get better, when I never thought I could enjoy another family event, I'm glad to remember and know that I can be happy. It is possible.

In years past I never thought I would be able to be happy again (happy happy, not manic). And I guess having been relatively stable for so long I must have eased into happiness, because today, having juxtaposed Kirkwood-stravaganza with the really difficult passages from the book I realize that I have the ability to be happy. It's not broken. And I think maybe that is what I'm here to tell you all. Eventually happiness comes back. When you get to the deepest most painful place, the place where people are telling you things will get better and you just want to spit in their face because you know it's a lie, listen.

It takes a long time for all the pieces to settle when your life has been a tornado, but eventually, just as everyone told me it would, it did all come back together. I am happy. I am whole.

The Courage to Change

It has been quite a while since I have posted anything on here so I must apologize.  With all the work we have been doing the blog has fallen a bit behind. I would also like to let you all know that I have been given the honor of creating and manning the brand new BringChange2Mind blog (http://bringchange2mind.wordpress.com/) so when I am not writing here, please check the BC2M blog to see if I am posting there. I will try my hardest to stay loyal to both.

And now a quick update... In the last month since I wrote I have been to St. Louis, Chicago, and New York, and been the team leader for two NAMI Walks, one in Seattle and the other in Portland. It has been an extremely inspiring, energizing, and exciting month as I made new friends (the Close/Pick family, Kitty and her mom, the Francolini family, and so many more), learned about new research and treatments, and met and listened to new and old heroes (Glenn Close, Jessie Close, Calen Pick, Kay Redfield Jamison, Marya Hornbacher, and Rosalyn Carter). If you don't know who some of these people are please look them up as they are all heroes in the mental health awareness (and women empowerment) world. I have had the honor of attending fabulous events in cities I had only dreamt about ten years ago. But it has not been all easy and joyous.

As I present and speak publicly about my illness and my (relative) stability I feel as if I need to always be happy, and if not, always act happy. I had gotten to the point where I found myself presenting a false image because I feared that if I let people know that I still get depressed sometimes, or still feel unsteady sometimes, they will feel there is no hope. I felt that if I am going around the country telling people that there is treatment and stability for people with mental illness, my hiccups in stability would prove this false. I have talked about this before in a past post so I won't go into it completely now other than I promised myself that I would always be completely honest, so, here it is...

The last month has been extremely hard as well. It has not only been the anniversary of my first hospitalization and the exhaustion of five national trips in one month followed by two 5K walks, but meeting so many people with one's same story is very difficult. Meeting so many people that share your story and hearing their struggles not only feels comforting as you are swiftly pulled from the aloneness of a diagnosis, but it also reminds you of all the pain you experienced. It reminds each individual of how lonely you really were and how different your life would have been had you just had this new friend(s) with you from the beginning. It is strangely validating, empowering, and comforting, and yet, it is often painful to meet people with such similar stories of agony, near suicide, self-harm, self-medication, etc., etc., etc. It is beautiful because everything is suddenly okay. You have found yourself on solid ground. But you can't hep but remember how terrifying it is to dangle from the cliff.

The last month has been more than exhilarating. It has reminded me of how much I love my family, how happy I am that I am alive, and how honored and lucky I am to have the opportunity and the health to do all the things that I do. It has once again reminded me why I need to continue to speak and share my story. People should not be alone in this fight. People should not have to feel pain when they finally find community years after their initial diagnosis. People should feel comforted, cared for, and loved from the very beginning. Feeling the ups and downs of this month has made that fact even more present in my mind. We need to change things now. We cannot let this continue to happen. We cannot let so many of our children end up on the streets, end up incarcerated, end up losing their lives by self-medicating. We cannot let a treatable enemy like suicide claim so many victims because they are alone and scared. We need to talk about this. We need to change things fast. Please help us change things by sharing stories, by letting people know that they are not alone. In my mind the biggest way to fight stigma is to talk. Share your truth. We need to remind the nation that 1 in 6 adults suffers from a mental illness by sharing real stories from the heart. Please have courage, for all of us.

Treatment

Just in case you missed it the first time...

What is going on here?!?

I think this is a question that many people with a mental illness ask themselves. Why am I feeling like this? Why am I acting like this? Why can't I make it stop?!

These were the thoughts that were rapidly firing in my head as I tried to figure out why I just couldn't be happy and go out with my friends, or why I just couldn't slow down and relax. For the longest time I hated myself for not being able to fix "it". In this society where we are told we should "just smile" or "walk in the sunshine" we assume it is our fault for not trying harder. We assume we are weak or bad for not perfectly controlling our mind and our body. We assume that there is something wrong with our personality as opposed to our chemistry. When I was first depressed to the point of suicide I got into a cycle of feeling agonizing pain of depression, exhaustion and defeat from not being able to fix it, and an extreme hatred for my lack of strength and drive to pick myself up. It wasn't until I was in the hospital on a suicide watch that I was given my first tentative diagnosis, Bipolar II.

Now, I grew up with a special ed teacher mom and a vocational rehabilitation counselor dad. I grew up being taught the importance of being sensitive to disabilities, the equality between every person no matter their difference, and the importance of providing access and help to those with specific needs that may be different from my own. I grew up obsessively reading the DSM and diagnosing my guinea pig, Herman, with Tourettes Syndrome because he had certain ticks and would squeak uncontrollably at times. (And although I knew all about Tourettes by the age of seven I knew very little about guinea pig ear mites). Anyway, when it came down to it,  I knew about disabilities. I knew all about "differences" and the normalcy of said differences. I knew all about what the word "label" meant in that community and knew that one should not use a condition to classify the whole of a person. 

Maybe this is why it hurt so much when I was diagnosed. Maybe deep down in my heart I knew just how little the rest of the world knew about disabilities. Maybe I knew the discrimination and misunderstanding that came with a mental illness label, because I found my mind screaming "No. Not me! I am not BIPOLAR. I am not like that. I'm not CRAZY". To me, someone who found every disability as simply another thing that makes us unique and special, this diagnosis made me into something I didn't want to be. It grouped me into a category that was bad. And whether or not the people in this category were "bad" or not, societies view and opinion of them was. I was not going to be one of them. I had spent my entire life trying to be perfect, flawless, and this was the biggest flaw I could ever imagine.

 However, on the other hand,there was the small, scared, childlike voice inside of me saying, "its not my fault". Even writing this today makes me tear up when I remember just how hard I tried to make myself feel normal, be normal. I tried so hard to control my emotions, but the more I tried, and the more I failed, the more I punished myself. I had two competing voices in my head, the blamer, "it's all your fault! If you tried harder we wouldn't be where we are today!" and the blamed, "I try so hard. I'm not good enough. I deserve this pain." It was a dangerous downward spiral that became even worse when it moved from mental to physical hatred. Having a diagnosis validated those "it's not my fault" cries of the blamed. It allowed me to start being a little bit nicer to myself.

It took me a long time to be nicer to myself, and in many ways it is still a very difficult struggle. The diagnosis, for me,  was one of the most life changing parts of my illness. Though it may not have been more life changing than almost losing my life, it changed my view of myself. It forced me to come to terms with the blamer and the blamed. It helped me realize who I really am and whether or not a label (BIPOLAR) defined me. At first I felt that the words were etched into my forehead. I felt that with one word I was someone completely different. Years have taught me that my diagnosis can never define me. It may define some of the traits of my illness, but it will never define my exact reaction to those traits, or even my reaction to my reactions. Through my diagnosis I have been able to take the blame away and realize that this is simply something  unique about me. A blessing and a curse that makes my life slightly different from other peoples' lives. In finding my diagnosis I have found the most important thing of all, the map towards treatment.

Next time...why do we love the diagnosis? We love treatment. Why do we love treatment? Because it allows us to function again!

The Diagnosis (Helpful Resources)

The momma and I have decided to make March the month where we talk about the diagnosis. So in the next month I am hoping to share my thoughts on the diagnosis (and more specifically that of bipolar disorder, since that is the one I know most intimately), my thoughts on the pain of having a new label ("bipolar"), and my thoughts on the importance of finding an eventual diagnosis so that you can get the treatment you need.

So, the first thing that I would like to do is to provide resources for information about the main diagnosable mental health conditions. I want to provide this first, rather then share my personal story, because to some, good resources may be more urgent. As I discuss my diagnosis throughout the month you can always go back to this post for further information. Because so many of these sites do such a great job at explaining and addressing these illnesses (though I hate to call them illnesses) I will simply provide links to their explanations and definitions rather than attempting to create my own. I want to provide resources so that you can learn more about these illnesses and their signs and symptoms. All of these resources should be hyperlinked, so just click on the pinky/purply text.

The best place to start when learning about mental illnesses is to check out NAMI’s (National Alliance on Mental Illness) “mental illnesses” links page. Through this page you can access information on illnesses such as bipolar disorder, schizophrenia, post-traumatic stress disorder, major depression, borderline personality disorder, obsessive-compulsive disorder and many others. Each page talks about what the illness is, how common it is, what the symptoms are, what medications and treatments are used, and more. You can also visit BringChange2Mind.org and under “Learn the Facts” view a quick list of common signs and symptoms for Post-Traumatic Stress Disorder, Depression, Bipolar, and Schizophrenia. For more detailed information you can visit the National Institute of Mental Health’s (NIMH) Health and Outreach page .

If you are worried that you are suffering from an undiagnosed mental health condition there are several online mental health screenings. You can find some of these at the Depression and Bipolar Support Alliance (DBSA) website. At this link you can find confidential online depression, mania, and anxiety screenings, as well as a downloadable child mania rating scale. Of course, if you are not only worried that you are suffering from a mental health condition, but are also having thoughts of suicide please visit the National Suicide Prevention Lifeline (http://www.suicidepreventionlifeline.org/) or call 1-800-273-TALK.

The important next step if you think you have a mental health condition is to talk to a professional. It is extremely important to talk to a doctor before you diagnose yourself, but it is also important to go into the appointment with as much information as you can so that they can look at all the facts and get you the help you need. If you do not have your own doctor, and cannot find one in your area resources like BringChange2Mind's contact us page and the Knowledge Exchange Network (KEN)
(1-800-789-2647, 1-800-789-2647 or  1-877-495-0009, 1-877-495-0009
Live operators available 8:30 AM — 5 PM EST to refer you to public mental health clinics near you) may be able to help you.

Once you have an appointment, Healthy Minds has a page devoted to “Choosing a Psychiatrist”, answering questions like “where do I start?” and “what treatments do psychiatrists use?”.

I hope that some of these resources help make it easier to learn about a possible mental health condition and how to move closer to a diagnosis. In my next couple posts I will be discussing my personal diagnosis, and the importance of reaching a diagnosis.

My story continued...

To follow up from the last post I want to once again say that we are making February our "share your story month". Because of this it is probably appropriate that I continue to share my story in February not late January. After sharing my story last week I know many people are wondering where I am now, maybe not necessarily occupationally because you can follow that on our website, but emotionally.

So out of my commitment to be completely honest to my readers here is my story now, today, in all its emotionally exposed glory:


Yesterday I went to see my psychiatrist. I told him that I am feeling slightly moody and find myself creeping into these unintended, uncontrollable moments of frustration, hyperactivity, or utter exhaustion. We talked about the need to "tweak" my meds, and we talked about the likelihood of changing one out completely sometime in the near future.

Now, I have been stable for a long time, aside from a small yearly depression that comes around the anniversary of an overdose, a depression that lasted slightly longer this year, but was still completely manageable. I still consider myself stable. But I continue to have these little hiccups of symptoms. Moments where I would feel much better jumping on the bed for hours than I would trying to attempt even a partial night's sleep. Moments where I feel so exhausted after having lunch with someone that I come home and pass out in seconds. And worst of all, moments where I find myself furious over the thought of doing dishes (and I am not an angry person by any means).

I tend to freak out about such hiccups. I think, is it coming back?! Oh my god, what if I have mixed episodes again! I'll have to be locked up! All the work I'm doing will be ruined! And then I spin off into these worry tangents until I either hit a wall, cry hysterically, or slap some sense into myself and tell myself to knock it off! These are hiccups, nothing terrible is going to happen. I am not going to suddenly loose it with all the safety nets in place, and all the lessons I have learned.

And so I go through this, I have this constant conversation with myself every time a little bump comes about. But then my common sense kicks in and reminds me that:
1) every time I felt an episode coming in the past I told my doctors immediately
2) I have learned healthy, safe coping techniques if things do go wrong
3) I am aware of the most minute movements towards any episode
4) I have an amazing support network

When I go through these hiccups, these "tweaks" in my meds I am always scared to tell people. I travel the country telling people my story, telling them horrifying things but making them feel better by saying "but I'm stable now" at the end. And I am. Just maybe not perfect. And I fear telling people, "I'm great but I have been having issues with my meds", or "I'm wonderful, but have been having small worrisome mood swings lately", because I'm afraid they won't get it. I'm afraid they will still be afraid for me. So I often tell them I'm fine no matter what.

But that's not truly telling my story. That's not being authentically honest. So I have made a promise to myself, I will always tell people exactly how I really feel. And if they worry I will remind them of all the things I remind myself. I will tell them how I feel in order to show them that when you are bipolar you have small bumps sometimes, but they don't paralyze you. You have to keep going on with your life. And you can with all the safety nets in place.

So, here it is, here is me right now, at this moment:
I am Linea. I am bipolar and have been having small mood swings lately that are causing me to have to make small adjustments to my medications and it makes me anxious. However, I am completely fine. I am capable and happy doing all the work that I do because I know how to take care of myself. Things will not happen as they did in the past because I know how to handle my stress levels, how to keep myself from coping in unhealthy ways, and how to ask for help when I need it. I am stable. I have bumps. And it's okay.

My story

We (the momma and I) have decided to make February a month of sharing stories to fight stigma. So, along with our newly posted video on YouTube we are going to start sharing our stories and learnings on our blogs, starting conversations about it on our Facebook and Myspace sites, and commenting on it on our Twitter page. So, visit us, chat with us, and learn with us. And without further adieu, here is my story...

There was a moment in my life when I almost drowned.

Living in the largest dorm in the country with three best friends, experiencing my first serious college boyfriend, living the perfect life of a well-off artsy college kid, I couldn’t have dreamt of anything better. That is, until I turned my back to the ocean and was swiftly and dramatically pulled in by the undertow.

One moment I was there and one moment I wasn’t. It was as if I had suddenly had my brain replaced by someone weaker, angrier, sadder. I didn’t know where I was or what I had set out to do anymore. I couldn’t understand what went wrong. I couldn’t understand why I was suddenly seeing pools of blood every time I closed my eyes.

It was a dramatic and intense case of depression. I stopped eating. I broke up with the man who was, at that time, the love of my life. I stopped leaving my room. I stopped all contact with the world, and whether I pretended I was there or not, my eyes were empty.

This went on for several weeks. Floating around Chicago, the city that I had worked so hard to get to. To me this went on for a lifetime. I floated out to sea.

Then my boyfriend, who was now just a friend-friend, called my parents. He called, and just as swiftly as I was pulled under, I was pulled out.

Completely.

My dad arrived from Seattle no less then ten hours after he was called. My life, my room, and my thoughts were packed up and shipped out. Flown back to Seattle and, in my mind, never to return.

Nothing could have been more painful. Nothing could have been more dramatic to me at that point and place in my life. Nineteen years old and suddenly I was forced to leave my friends, my life, my freedom and everything that I had built within the last two years of hard-earned independence.

I arrived home tired, cold, and wet, water still in my lungs.

The next couple of years moved from an undertow to a tsunami. My mind moved quickly from a simple depression to a devastating suicidal obsession. Looking back I am amazed I am even here to tell my story.

In the next year and a half I spent time in hospitals for suicide prevention and for overdose recovery. I spent time in apartments, manic and drugged and depressed and dangerous. I spent so many hours feeling completely out of control of my mind and so many hours trying to fight against it with every form of self-medication and self-harm I could find that I am amazed I have the ability to form thoughts or press my fingers to these keys.

It took me a long time to come to terms with what was happening. After having a “wait and see” diagnosis of bipolar disorder II at nineteen I spent many, many months fighting the label and implications before I finally received my final, “for sure” diagnosis of plain old bipolar I. My months and years of fighting only made things worse and it took me a long time before I realized that if I was good to myself and my body, my bipolar would be good to me. Who knew stimulants could make you manic or alcohol could make you devastatingly depressed!

Once I finally gave in and decided to change my life things began to turn around again. Though it took lots of self-care and finding the right doctors, counselors, and meds, my stability allowed me to live the life I had always dreamed of living. My stability was more then just taking care of myself and finding the right help however, it was also my amazing luck to have the opportunities and support network I do. It was this fact that inspired me to begin to make a difference in the mental health world.

Having spent time in the worst psych units with the saddest cases I realized that things must change. I realized that people need to talk about these things. People needed to be able to talk about their thoughts, lives, and feelings. We need to be able to share our stories.

So…here I am today, graduating, speaking at conferences, in classrooms and auditoriums, writing and collaborating with mental health and education professionals, working with amazing mental health organizations, writing a book. Through my experiences I have realized that I needed to make a difference, and through my opportunities I have hopefully begun to do so. I am so excited and pleased that I have the opportunity to make the differences that I am seeing.

Today I have found my way back to dry land where I can finally stand on firm ground, and it is here that I will help others do the same.

(This picture was taken when I was 20. I look a little different now that I finally take showers and have let my natural hair color grow back.)

love and conversation

I believe that I have already spoken about the difficulty and fear that can encompass romantic relationships when someone sees themselves as unstable, depressed, or "mentally ill", so I won't try to go too far into that direction. (If I have not gone enough into it please let me know in a comment so that I can be sure to write my next blog on the topic.) What I think is important to talk about is my current relationship and the interaction it has with my current diagnosis.

I am dating and living with an amazing boy, I mean man, who I have been with for quite a while now. I feel we have an amazingly healthy relationship and that is why I feel comfortable sharing this for the blogosphere and for readers hoping to learn or hear more about how to make a relationship work when someone is feeling unstable, etc. My boy, J, is an amazingly stabilizing force. One that I often find myself feeling I couldn't live without. And it is exactly this worry that I think it is important to be aware of. Whenever I have this specific worry I always find it is my own fear of my diagnosis, my being bipolar, that leads me to feeling I can't do without him. I find myself thinking I can't do without someone that I could see being a care taker. It is when I get to these points however, that, though I would not want to be without him, I must always remind myself that I would do fine without him. (But that is once again going back to relationships, mental health conditions, and autonomy.)

I have been thinking a lot about the equality of our relationship. Something that I feel is crucial for all my relationships, romantic or otherwise. I have been thinking a lot about how amazing he is at taking care of me. He does the dishes when I am overly busy with school/conferences/etc. He reminds me to pay the bills when I am too focused on my travels to realize the date. "Oh yeah, it is a new month, maybe I should pay rent..." He seems so often to be the stabilizing force in my own life and in our relationship.

Lately, however he has been extremely busy with his own crazy schedule and has been working hard simply to keep his own head above water. This has led me to make the decision that while he has helped me hold things together when my life lost control, I should help him when he is trying to keep his together. So last night we had a wonderful conversation. I asked him, "what can I do for you?", knowing that he is the very opposite of me in his busy and emotional states--while I can become clingy and needy, he tends to want more of his own space.

The question led us into a wonderful conversation about our own needs, once again helping me realize the importance of being two independent beings within an equal relationship. Though he may hold me up at times when I am feeling unstable and needy, I know that I can do the same for him when things change. I also know that when I am feeling too depressed to help him and he is feeling too busy to help me that we will both chip in to help each other, even if it just means leaning on one another without doing anything else. I know that I can do my best to support him in these busy times, but I also know that he would completely understand if I was to say I can't based on my own emotional struggles. The importance and strength of our relationship all lies in an honest conversation.

For now, thanks to our conversation, my path is relatively easy. When asked what I can do to help he simply said, "keep your stuff picked up, do the dishes, and rub my back". That should be easy enough to handle, and if its not, I know he'll understand simply because we were open enough to talk about it.

The picture was a gift from J for my birthday. Visit his blog here.

Again

Found a beautiful poem by Tino Villanueva in the wonderful poetry book, Living in Storms: contemporary poetry and the moods of manic-depression edited by Thom Schramm. This book was suggested to me by my amazing and lovely poetry teacher Sam Green. (Everyone should check out his poems as well). But for now, read this and feel revived:

Again

So I depend again upon myself.
I've taught this part of me
to go unruined
through all enormous lessons
on defeat.
I've taught this part of me
to thrive among despair,
to be imperative
among chaotic numbers.
Though I may fall away from time to time
like draggled weeds in winter,
breathing thick stern air
in some back shadows of the walk,
I spring again from me,
from the dead quiet of my roots--
listen to me move.

By dawn
I am presence fixed
in the eyes of men.

Grieving the diagnosis

(I have no idea who did this art, but if anyone knows please let me know so I can give them the credit they deserve for such an awesome piece of work!)

My it has been a long time since I wrote a post. With school ending, the holidays, and a trip to Chicago I've been a little distracted as of late. However, its back to work, ultimately leading me back to blogland.

As I have somewhat discussed in previous posts, the last few months have been rather difficult for me. As my psychiatrist explained, I am a rather "hard patient" because my "life isn't all that stable" at the moment. But I wonder, now that I have what I believe to be a rather stable life, how is my life not stable? Now, I understand that I am in a strange sort of limbo being a new college grad without a job, (or at least a job that makes enough money to live an "adult life"), and I know that I do a ton of traveling doing speaking engagements, (and as many people explain, jet-lag is hard if you're bipolar), but I feel that I manage my "unstable life" rather well. Or at least most of the time. Until I hit three solid months of depression, having been completely emotionally stable prior to my normal yearly late October relapse, (this yearly relapse is due to a mix between solemn and painful mental health related anniversaries and changes in weather), but this year it just kept going due to a few major added stressors (such as impending graduation and the fear of finding health insurance).

But all of this I believe has been addressed in past postings, so what I really wanted to talk about is grief. In these past four months I have been trying my damnedest to be healthy and stay well. I made sure that I was not only continuing to take my meds, but I was also maintaining healthy habits such as exercising (yoga and running), meditating, and additional stress relieving activities like my new found hobby: knitting. I have tried to be patient and kind to myself and have worked with my psychiatrist to increase and adjust medications to help me get over this bump. But as I found myself continuing to move deeper or simply stay in the "pits of despair" I found myself moving into the same mind-frame that I experienced when I was first diagnosed with bipolar. I found myself feeling, to put it simply, angsty. I found that I was reverting to the teenage-angst felt when life just doesn't seem fair. When you realize, why me? And why now? I found myself getting angry at whoever or whatever has done this to me. And though I continually feel that my bipolar is part of me, though not all of me, and that I wouldn't want to get rid of it, I simply wanted it to go away, if not for even a little while.

So I suppose my question to the world is, and specifically to anyone suffering from a chronic condition or disease (and I don't really consider bipolar a disease), do you ever get over this grief completely? Do you ever just cope and come to terms with the fact that you may continually have dips in your health, even if they continue to become increasingly easier?

I know that for me they have become easier, this is by far better than my initial diagnosis, but it is still terribly frustrating sometimes to know that I may have this occur again and again. All I know is that I will get through this and it will continue to get better, but somedays, on my most 13-year old angst ridden days, I can only continue to say, this sucks.

My Bipolar Checklist

This is something I wrote a long time ago after my first panic attack in months. Thought it might be something useful to share...

Okay Linea. Here we are. Here we are again. You on the bathroom floor. Your boyfriend tired and worried. Your mind numb. Now, given that this hasn’t happened in months and months we must figure out where this came from. It’s time to use the skills that you have gained in this "vast journey" of yours.

     First. Your “Am I Depressed” checklist:

     Within the last week have you been staring a lot? Been unable to read/clean/get important things done? Have you been drinking alone? Do you spend hours sitting at the computer doing nothing? Have you been unable to cry? Do you have a need to harm yourself?

     No.

     Second, “Am I manic?”

Within the last few days have you been pacing, shaking, or cleaning excessively? Do you have a lot of repetitious thoughts, words, or phrases? Have you started the mantra of “I need, I need, I need…”? Has there been excessive spending, partying, anything?

No.

Third, in general, have you:

     Had an upset stomach?

     Been throwing up?

     Been cutting?

     Been eating excessively?

     Been drinking excessively?

No. No. No. No. No. 
Everything checks out fine. 

This is not a bipolar episode. I often find myself checking these lists daily. If it is none of the above then I know that I am simply having the same normal feelings of pain that every other person on earth experiences. If it is none of the above then I simply need to see where the pain is coming from and then just breathe it out. Just sit with it knowing that I have been through worse. I can get through this.

Advice from Dr. Manhattan...

Given that I have been continuously trying to calm down through my techniques of self-care (yoga, lake-sitting, etc.), I am frustrated that I still find myself freaking out about my future. I find that I build up so much worry and anxiety that everything seems to spin around me making it impossible to even grasp onto a calming impulse.

Last night I had a conversation about the human ability to forget what is important and distance ourselves from the very things that keep us alive. I find that I am constantly thinking about what to do with my future, or how to be more accomplished, or how to do things better and more efficiently, but I forget what I really am, or what life is really about. I am constantly trying to be "good-enough" when I don't even know what that means or what that entails.

And then I remembered reading the Alan Moore's Watchmen and I thought about Dr. Manhattan. Dr. Manhattan is this brilliant scientist who became stuck in an "Intrinsic Field subtractor" where he was disintegrated, allowing him to return as a super-human being. Manhattan eventually becomes so disconnected from earth and human beings that he decides to live on Mars where he can find more meaning in the movements and developments of the lifeless planet. Eventually however, after speaking to his ex-girlfriend about the amazing fact that she exists in the first place, he changes his mind and decides human life is a miracle after all.

He tells her that he has discovered a "Thermodynamic miracle", in the fact that, "in each human coupling, a thousand million sperm vie for a single egg. Multiply those odds against countless generations, against the odds of your ancestors being alive; meeting; siring this precise son; that precise daughter...until your mother loves a man she has every reason to hate, and of that union, of the thousand million children competing for fertilization, it was you, only you, that emerged, to distill so specific a form from that chaos of improbability, like turning air to gold..."

And I realize what I should always remember: the mere fact that we are alive in the first place is worth everything. That makes us good enough. The fact that we are alive is so amazing that we don't need to do anything or be anything to make us any more important than we already are.

So thanks Dr. Manhattan. I need to keep remembering that.

Time to Breathe

Being that I am getting closer and closer to the end of this six year bachelors degree I am suddenly having that future focused, world ending, life-crisis that every college grad eventually feels. Well, that most every grad feels. I tell myself, if I would have been working harder towards a specific goal, i.e. grad school, I wouldn't be feeling like this. Or I say, if I would have chosen a degree that fed right into a job I wouldn't be feeling like this. But then I say, how? How could I have done these things when life is so unpredictable? When and how could I have chosen a degree and grad program that would have included several hospitalizations, a diagnoses, and what seems like millions of medication changes? How could I have planned for this? And though I may talk some sense into myself at this point, the cycle continues going round and round: panic, intellectualizing, sense, relief, panic...

So, in a time when I am feeling more overwhelmed then usual, (though I am almost always usually feeling overwhelmed,) I find myself having to be extra good to myself, both mind and body. When I present around the country people always ask what I do to help myself stay stable in times like this, so in order to truly explain I will just give you a run down of my day today...

I woke up and made myself breakfast. Having recently bought some new cookbooks that focus on the importance of healthy food to our mind and body's overall health, I took extra time preparing a breakfast that was nutritious with all the vitamins and minerals my body needs. Being a vegetarian, and a person easily susceptible to all sorts of colds, viruses, etc., I find it especially important to get a healthy diet.

After breakfast, (and a bit of light reading,) I stretched and did some strength training exercises. I find that even if I do a very minimal amount of exercise, my body and mind feel so much better throughout the day. I feel best if I do between twenty minutes to an hour and a half of good cardio, stretches, and other exercises. I prefer running, yoga, pilates, and a little weight lifting. If I am feeling depressed running is better, but if I am feeling manic yoga and stretching is best.

After I exercised I did a small meditation. I try to do a little meditating each day because I feel it helps me refocus and organize my brain. I feel that by allowing my thoughts to calm and settle I can find relief from stress, worry, anxiety, agitation, and lots of other emotions that I can't manage if I continue to multi-task at break-neck speed. Though it is sometimes difficult to meditate, I find that it is very important to my wellbeing and I find that the more I do it, the more I begin to feel it in the rest of my life.

The last thing that I do is to allow myself breaks throughout my work. Because I always have a million things going on I try to allow myself small breaks and small rewards to make the work easier and more manageable. When I have a chance to do work outside (or in a different atmosphere then I would usually work in, such as a coffee shop,) I try to take the opportunity. Though I may feel like I work slower, I find that it is important for me to have a change of environment. Today, for instance, I worked by the lake. I also like to give myself small breaks from really difficult work by allowing myself to do things I normally wouldn't do, like watch a little television or buy dinner out.

Well, these are some of the things that I have been working on that I thought could be both beneficial for me to remember and useful for others to see. I will continue to work on these and hope that others might integrate them into there own lifestyles. And as that terrible cliche goes, I need to "stop and..." well, you know...

Facing Us and the Wellness Tracker thingy

I just found an amazing site called Facing Us. It is pretty amazing for anyone experiencing bipolar disorder because it allows you to track your moods with the DBSA Wellness Tracker, you can create your own wellness plan, journal, gather wellness tips from others, and find new ways to use creativity as a key to wellness. I like the site because it is super easy to use, it basically takes the form of a little house in which each room provides new ways to organize and track your wellness. It is both cute and artsy, so that works for me, and it provides easy check mark boxes for all those things I should keep track of but never do, such as moods, and wellness goals. It is definitely something cool everyone should check out.

we should all just walk right in.

Lately I have been thinking about trauma a lot. I have been thinking about how people deal with the terrifying, heart-shattering, un-breathable moments in life. I think it all began with several interesting conversations with the boyfriend about people and tragedy. I have also been reading books that deal with similar topics (Atwood's Alias Grace, Faulkner The Sound and the Fury).

So I thought about what happened to me in the past, specifically to do with suicide, and I thought about my distance from it today. I am not sure whether I am just so used to talking about it at conferences, or so used to writing and rewriting papers and a book about it, but somehow I feel quite distanced from those traumatic places in my past. A stranger perhaps rather than the person that truly experienced them. So I talked to my counselor about it and realized that though it seems easier to continue on as a stranger with minor "unconnected" sadnesses, I need to reconnect and fully deal with my fears and pain. I have become so distanced that at times I almost feel like a liar going out and speaking about my emotional understanding of suicide. Do I understand it? Can anyone ever say that? Or am I too numb to truly remember or know what I feel.

But anyways, here is the point, and this is one I had to be told in order to believe: I have experienced it. It did happen. And though many people with horrible trauma find themselves feeling like liars or fakes, or feel as if they simply made it up,  it is something to confront. (I believe.) It is something to acknowledge and rediscover in order to truly let it go. It sucks going through memories of those horrible moments in your life, but I truly feel that it is so much better to confront things before they boil up some other way. I don't have anywhere close to as bad of trauma as many people, but I personally need to remind myself that I was there, and I did feel it. I need to remind myself that I am not lying to people by telling them I understand suicide and the pain of feeling like you don't have any more strength to survive. I just need to remind myself that ignorance is not bliss, not for me, because if I keep trying to forget I will only feel worse. Perpetually.

(And for all those of you who will wonder if I'm "okay," (dad, Jennifer,) or if I am okay doing all the work I am doing with presentations and what not, I only have to say that I am more than okay. I feel like this is important and even more meaningful when it comes to sharing my story with people. We all need to be okay with the confrontation of our selves, our demons, our fears. It is a continual process, and one that I hope my heros are constantly doing too. You go Reverend Tutu!)

The Decoy

So I'm going to Hawaii next Thursday to speak at a conference and I have found myself being VERY weird about my body insecurities. I am often insecure and worried about the usual girl things: flattering clothing, the right coat, make-up, not wearing anything the common sense fashion committee hasn't okayed, etc. But, I am not usually as bad as I have been these past two weeks.

For those who don't know me I must admit I have had some eating problems in the past, therefore it is important for me to check in with myself if I am being weird again. This however seemed a weird kind of different. I started by being obsessed with my weight, while not doing anything to change it. I thought about it a lot, a lot a lot, but I wasn't exercising or eating different other than saying no more candy until after Hawaii, (which is always silly, because I am completely addicted,) but then I randomly decided to fast, for my health. I wanted to fast because I have heard about the health benefits of detoxing your body naturally by simply drinking water all day. I have wanted to do this for years now, so I finally decided to do it.

So I did, and it was awful, but then I felt so good afterwards, and it was still unrelated to Hawaii, but a few days later I couldn't stop thinking about fasting. All I wanted to do was stop eating. I just wanted to fast and fast. I also started thinking about old purging patterns, and though I didn't act on them I got scared enough to really think about what was happening.

And then I realized, it was different than past times because there was this fakeness about it. I wasn't really feeling worried about my body, I was just convincing myself that I was. I mean, I could be in a little better shape, but on the whole I am doing fine. I realized that it was just a good distraction from these other horrible feelings of depression that I was suppressing. I was using it as a decoy of sorts because my subconscious-self knows that the best way to distract my conscious-self is by giving me a reason to torture myself. So, once I realized that and realized I had to deal with something deeper I began to torture myself in a new way by trying to figure it out. And then, BAM, I figured it out: Thanks to my superbly ESP powered mom I discovered that it was almost exactly three years since my diagnoses with bipolar, three years since the first time I tried to kill myself, and two years since I tried to cope with pain through purging.

The body is amazing to me. My bodies ability to feel dates before I remember them, year after year, season after season, will never cease to amaze me. From now on I am making a timeline of my body's favorite torture dates. I am going to make sure I am one step ahead to stop those horrible decoys from taking over.

And thank God that's over because I do love to eat.

Phil's Electronics

What do we choose to broadcast? What do we choose to take in? How do we negotiate our media as both individuals and a country. I often find myself having a hard time moving from the tvs in front of me, feeling like a child blinded and enthralled by so many moving pictures. Sometimes I just can't sleep.

(art by Chris Applehands)