The pieces come back together...

This morning I returned from a weekend where eighteen family members (three adopted family members) came to one house to celebrate being together. We ate and ate, practiced some old family traditions (Scol!) and slept anywhere we could that wasn't too damp or lumpy (though this usually changes by morning). It was a beautifully sunny weekend and I felt so much love between all of us as we sat around the fire, enjoyed homemade pies or feasted on paella.

When I got home this afternoon I realized it was once again time to work on the book (which now has a publisher!!) so I left my bag by the door and got to work. I find it important to note that I travel around the country speaking publicly about my story. I share it all the time to audiences of 700+, but I haven't read it in a while. In a little over a year and a half in fact. And I will tell you what, it is hard.  Really really hard. And painful.

It is hard to remember, no, let me rephrase, it is hard to read your exact thoughts when you are dealing with the pain of suicidal ideation or the pain of losing friends because of your depression. It is one thing to work through it everyday, which I have gotten much better at doing, but another thing to return to your exact transcripts from the moment of pain.

I remember when we first started playing with thoughts about the book,  people would ask us why we would want to revisit so much pain. And I always knew why, I want to teach the people who don't understand and let the ones who do understand know that they are not alone. I knew it would be hard. But I suppose, after a year and a half of not reading it I forgot.

I suppose the thing I am here to say is, I am glad that I spent the weekend with my family. I'm glad that they could remind me of the happiness and joy in my life even when I'm forced to remember the pain. I'm glad to know that when I was in the most painful spots, those points in the book that made me start crying even  reading them today,  those moments when I never thought anything would ever get better, when I never thought I could enjoy another family event, I'm glad to remember and know that I can be happy. It is possible.

In years past I never thought I would be able to be happy again (happy happy, not manic). And I guess having been relatively stable for so long I must have eased into happiness, because today, having juxtaposed Kirkwood-stravaganza with the really difficult passages from the book I realize that I have the ability to be happy. It's not broken. And I think maybe that is what I'm here to tell you all. Eventually happiness comes back. When you get to the deepest most painful place, the place where people are telling you things will get better and you just want to spit in their face because you know it's a lie, listen.

It takes a long time for all the pieces to settle when your life has been a tornado, but eventually, just as everyone told me it would, it did all come back together. I am happy. I am whole.

The Courage to Change

It has been quite a while since I have posted anything on here so I must apologize.  With all the work we have been doing the blog has fallen a bit behind. I would also like to let you all know that I have been given the honor of creating and manning the brand new BringChange2Mind blog (http://bringchange2mind.wordpress.com/) so when I am not writing here, please check the BC2M blog to see if I am posting there. I will try my hardest to stay loyal to both.

And now a quick update... In the last month since I wrote I have been to St. Louis, Chicago, and New York, and been the team leader for two NAMI Walks, one in Seattle and the other in Portland. It has been an extremely inspiring, energizing, and exciting month as I made new friends (the Close/Pick family, Kitty and her mom, the Francolini family, and so many more), learned about new research and treatments, and met and listened to new and old heroes (Glenn Close, Jessie Close, Calen Pick, Kay Redfield Jamison, Marya Hornbacher, and Rosalyn Carter). If you don't know who some of these people are please look them up as they are all heroes in the mental health awareness (and women empowerment) world. I have had the honor of attending fabulous events in cities I had only dreamt about ten years ago. But it has not been all easy and joyous.

As I present and speak publicly about my illness and my (relative) stability I feel as if I need to always be happy, and if not, always act happy. I had gotten to the point where I found myself presenting a false image because I feared that if I let people know that I still get depressed sometimes, or still feel unsteady sometimes, they will feel there is no hope. I felt that if I am going around the country telling people that there is treatment and stability for people with mental illness, my hiccups in stability would prove this false. I have talked about this before in a past post so I won't go into it completely now other than I promised myself that I would always be completely honest, so, here it is...

The last month has been extremely hard as well. It has not only been the anniversary of my first hospitalization and the exhaustion of five national trips in one month followed by two 5K walks, but meeting so many people with one's same story is very difficult. Meeting so many people that share your story and hearing their struggles not only feels comforting as you are swiftly pulled from the aloneness of a diagnosis, but it also reminds you of all the pain you experienced. It reminds each individual of how lonely you really were and how different your life would have been had you just had this new friend(s) with you from the beginning. It is strangely validating, empowering, and comforting, and yet, it is often painful to meet people with such similar stories of agony, near suicide, self-harm, self-medication, etc., etc., etc. It is beautiful because everything is suddenly okay. You have found yourself on solid ground. But you can't hep but remember how terrifying it is to dangle from the cliff.

The last month has been more than exhilarating. It has reminded me of how much I love my family, how happy I am that I am alive, and how honored and lucky I am to have the opportunity and the health to do all the things that I do. It has once again reminded me why I need to continue to speak and share my story. People should not be alone in this fight. People should not have to feel pain when they finally find community years after their initial diagnosis. People should feel comforted, cared for, and loved from the very beginning. Feeling the ups and downs of this month has made that fact even more present in my mind. We need to change things now. We cannot let this continue to happen. We cannot let so many of our children end up on the streets, end up incarcerated, end up losing their lives by self-medicating. We cannot let a treatable enemy like suicide claim so many victims because they are alone and scared. We need to talk about this. We need to change things fast. Please help us change things by sharing stories, by letting people know that they are not alone. In my mind the biggest way to fight stigma is to talk. Share your truth. We need to remind the nation that 1 in 6 adults suffers from a mental illness by sharing real stories from the heart. Please have courage, for all of us.

Just in case you missed it the first time...

My story

We (the momma and I) have decided to make February a month of sharing stories to fight stigma. So, along with our newly posted video on YouTube we are going to start sharing our stories and learnings on our blogs, starting conversations about it on our Facebook and Myspace sites, and commenting on it on our Twitter page. So, visit us, chat with us, and learn with us. And without further adieu, here is my story...

There was a moment in my life when I almost drowned.

Living in the largest dorm in the country with three best friends, experiencing my first serious college boyfriend, living the perfect life of a well-off artsy college kid, I couldn’t have dreamt of anything better. That is, until I turned my back to the ocean and was swiftly and dramatically pulled in by the undertow.

One moment I was there and one moment I wasn’t. It was as if I had suddenly had my brain replaced by someone weaker, angrier, sadder. I didn’t know where I was or what I had set out to do anymore. I couldn’t understand what went wrong. I couldn’t understand why I was suddenly seeing pools of blood every time I closed my eyes.

It was a dramatic and intense case of depression. I stopped eating. I broke up with the man who was, at that time, the love of my life. I stopped leaving my room. I stopped all contact with the world, and whether I pretended I was there or not, my eyes were empty.

This went on for several weeks. Floating around Chicago, the city that I had worked so hard to get to. To me this went on for a lifetime. I floated out to sea.

Then my boyfriend, who was now just a friend-friend, called my parents. He called, and just as swiftly as I was pulled under, I was pulled out.

Completely.

My dad arrived from Seattle no less then ten hours after he was called. My life, my room, and my thoughts were packed up and shipped out. Flown back to Seattle and, in my mind, never to return.

Nothing could have been more painful. Nothing could have been more dramatic to me at that point and place in my life. Nineteen years old and suddenly I was forced to leave my friends, my life, my freedom and everything that I had built within the last two years of hard-earned independence.

I arrived home tired, cold, and wet, water still in my lungs.

The next couple of years moved from an undertow to a tsunami. My mind moved quickly from a simple depression to a devastating suicidal obsession. Looking back I am amazed I am even here to tell my story.

In the next year and a half I spent time in hospitals for suicide prevention and for overdose recovery. I spent time in apartments, manic and drugged and depressed and dangerous. I spent so many hours feeling completely out of control of my mind and so many hours trying to fight against it with every form of self-medication and self-harm I could find that I am amazed I have the ability to form thoughts or press my fingers to these keys.

It took me a long time to come to terms with what was happening. After having a “wait and see” diagnosis of bipolar disorder II at nineteen I spent many, many months fighting the label and implications before I finally received my final, “for sure” diagnosis of plain old bipolar I. My months and years of fighting only made things worse and it took me a long time before I realized that if I was good to myself and my body, my bipolar would be good to me. Who knew stimulants could make you manic or alcohol could make you devastatingly depressed!

Once I finally gave in and decided to change my life things began to turn around again. Though it took lots of self-care and finding the right doctors, counselors, and meds, my stability allowed me to live the life I had always dreamed of living. My stability was more then just taking care of myself and finding the right help however, it was also my amazing luck to have the opportunities and support network I do. It was this fact that inspired me to begin to make a difference in the mental health world.

Having spent time in the worst psych units with the saddest cases I realized that things must change. I realized that people need to talk about these things. People needed to be able to talk about their thoughts, lives, and feelings. We need to be able to share our stories.

So…here I am today, graduating, speaking at conferences, in classrooms and auditoriums, writing and collaborating with mental health and education professionals, working with amazing mental health organizations, writing a book. Through my experiences I have realized that I needed to make a difference, and through my opportunities I have hopefully begun to do so. I am so excited and pleased that I have the opportunity to make the differences that I am seeing.

Today I have found my way back to dry land where I can finally stand on firm ground, and it is here that I will help others do the same.

(This picture was taken when I was 20. I look a little different now that I finally take showers and have let my natural hair color grow back.)

why so hard?

So, I had this paper that I was supposed to write. It was a simple paper, four to six pages synthesizing my biggest ideas throughout college and talking about my favorite classes. I was supposed to simply write about the ideas that snowballed in my mind. The ideas that connected with thoughts in other classes and the way they changed the way I understood the world. Normally, this assignment would thrill me. I love thinking about thinking. I love when my ideas connect and snowball ultimately making my world shatter through the realization that everything I thought I knew was actually wrong, or at least completely different than I ever thought. But this time, given that I have a lot of other stressors on my plate, things like a looming college graduation, a non-existent post-grad job, and the fact that the paper came at the anniversary of a very painful past experience, (a near death by overdose), it was nearly impossible to finish. It has actually taken me about a month over the due date to complete. And last night, finally, I turned it in.

So, why was it so hard, I ask myself. Aside from the obvious previously mentioned items, I realized that it forced me to look at a part of my life in a different angle. I found it strange that I can write a memoir about my experiences with bipolar, and travel the country sharing my story, but I couldn't seem to write a simple paper about my college career. The thing that I realized though, is that I have not had your average college career. Throughout my time in college I have been diagnosed with bipolar, been hospitalized two times, came extremely close to losing my life several times, and been through innumerable amount of ups and downs, round abouts, and zigzags through the world of mental illness, self-medication, and that continuous search for stability. It was through all of this that I had one goal: to just finish school. So it was through all of this that my biggest ideas formed. Through all of these things I was attempting to write papers, read, grasp big ideas. In the end my experience with bipolar and my experience as an undergrad became completely intertwined.

In realizing all of this I finally just realized that there was still healing to do. I still had to come to terms with a lot of trauma and pain that I thought I had already coped with. It is through these tasks, seemingly menial papers, that we originally assume to be easy that each of us must realize that there is always another level. There is always a deeper level to which we can explore ourselves and our lives. Always more to the story that we originally thought. Though the paper was extremely difficult and painful I came to realize that I needed to go to that painful level to truly come to terms with my college experiences. I needed sludge through the painful moments in my life one more time so that next time it might be a little easier. Sometimes we find ourselves asking, why is this so hard?! It's because we need to confront it, to push ourselves to the next level, and to realize that everything isn't as it seems.

we should all just walk right in.

Lately I have been thinking about trauma a lot. I have been thinking about how people deal with the terrifying, heart-shattering, un-breathable moments in life. I think it all began with several interesting conversations with the boyfriend about people and tragedy. I have also been reading books that deal with similar topics (Atwood's Alias Grace, Faulkner The Sound and the Fury).

So I thought about what happened to me in the past, specifically to do with suicide, and I thought about my distance from it today. I am not sure whether I am just so used to talking about it at conferences, or so used to writing and rewriting papers and a book about it, but somehow I feel quite distanced from those traumatic places in my past. A stranger perhaps rather than the person that truly experienced them. So I talked to my counselor about it and realized that though it seems easier to continue on as a stranger with minor "unconnected" sadnesses, I need to reconnect and fully deal with my fears and pain. I have become so distanced that at times I almost feel like a liar going out and speaking about my emotional understanding of suicide. Do I understand it? Can anyone ever say that? Or am I too numb to truly remember or know what I feel.

But anyways, here is the point, and this is one I had to be told in order to believe: I have experienced it. It did happen. And though many people with horrible trauma find themselves feeling like liars or fakes, or feel as if they simply made it up,  it is something to confront. (I believe.) It is something to acknowledge and rediscover in order to truly let it go. It sucks going through memories of those horrible moments in your life, but I truly feel that it is so much better to confront things before they boil up some other way. I don't have anywhere close to as bad of trauma as many people, but I personally need to remind myself that I was there, and I did feel it. I need to remind myself that I am not lying to people by telling them I understand suicide and the pain of feeling like you don't have any more strength to survive. I just need to remind myself that ignorance is not bliss, not for me, because if I keep trying to forget I will only feel worse. Perpetually.

(And for all those of you who will wonder if I'm "okay," (dad, Jennifer,) or if I am okay doing all the work I am doing with presentations and what not, I only have to say that I am more than okay. I feel like this is important and even more meaningful when it comes to sharing my story with people. We all need to be okay with the confrontation of our selves, our demons, our fears. It is a continual process, and one that I hope my heros are constantly doing too. You go Reverend Tutu!)